Sebbie's Story

Kindness is his superpower

From a single act of kindness during lockdown to a daily mission that's reached millions — this is how it began, and where it's heading.

Read his story

Against all

A fight from the very first breath

A fight from the very first breath

Sebbie was born seven weeks premature, weighing just 6lb 1oz. Within hours doctors realised he was struggling to breathe, and he was ventilated for two weeks. On day two, his parents were told to pray. He survived — and came home on his official due date.

A rare beginning

1 in 30,000

One of the rarest chromosome anomalies on Earth.

The diagnosis

Chromosome 8p21-23 Inverted Duplication Deletion Syndrome — a section of chromosome 8, both duplicated and deleted in an inverted pattern. So unusual that most doctors will never encounter it in a lifetime of practice.

It's also linked to Agenesis of the Corpus Callosum, where the two sides of the brain can't fully connect — affecting movement, communication, and the way the brain makes sense of the world.

What the doctors said

  • He would likely never walk.
  • He would likely never talk.
  • He might never sit upright on his own.
  • Serious concerns about his development.

What Sebbie did

He proved every single one of them wrong.

How Sebbie learned to communicate

He found his voice in his own way:

  • Makaton signing
  • PECS — Picture Exchange Communication System
  • Movement-based learning
  • Vibration-based sensory communication

Sebbie lives with lifelong physical and learning disabilities. But he stayed warm, funny and deeply empathetic — and he found his superpower.

Kindness is my superpower.
SH

Sebbie Hall

Founder, Sebbie Hall Kindness Foundation

His story didn't stop there. It became a daily mission of kindness. Take the challenge or read the mission.